This post thankfully has a happy ending. Leona was doing this thing that looked like seizures, eyes rolling arms shooting out, very disconcerting. We videoed it and went from her pediatrician to a neurologist. Then talked to Auntie Mel's bishop (who's the head pediatric neurologist at a top tier pediatric hospital in Cincinnati) who pulled some strings and got us in to the pediatric hospital here and alerted the top pediatric neurologist here to Leona's case.
Leona got an IV, an eeg, and a brain mri. It was all pretty scary, for us at least. Leona was everybody's favorite patient. She was so sweet and cute and smiley. You never would've know all that she was being subjected to.
The tech who was doing her eeg (pictured below)told us that every time she has a difficult patient she would remember sweet Leona who just smiled at her while she hooked up all of the electrodes.
The scariest part at least for me was the Brain MRI, which Leona had to be sedated for. They gave her a shot of something in her iv and she looked like a dead baby, it was horrible. We were very thankful that we got to be with her right up until they took her in to the MRI room and then immediately afterwards we could be with her until she woke up. It was so wonderful to see a huge, albeit a bit drunken, smile come across her face when she woke up.
The best part is that they essentially diagnosed her with acid reflux. Not seizures, which was wonderful We feel so incredibly blessed that she is alright and has suffered no brain damage.
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